It has been a little while since I updated, so here's where we are now.
Steve and I went back up to the Cleveland Clinic on Monday. Nothing new. They just want to keep a close eye on me - mostly my respiratory status, so until I am transplanted I will be going once every 4-5 weeks for a quick checkup. I gotta be honest I really really hope that I get "THE CALL" before we have to go back up. While we have come to absolutely adore my pulmonologist and her crew, I'm getting sick of blood draws, arterial blood draws, pulmonary function tests and walking evaluations. Every time my numbers drop ever so slightly. This is a good thing in a way because it makes my listing number go up, therefore increasing my chances of getting some lungs.
My doctor obviously has no real way of knowing because it is all based on a big algorithm of numbers and need (and a good amount of divine intervention) but she says she has a gut feeling that it will happen soon. I sure hope she's right. Waiting is hard work :)
So that's about it. We'll keep you posted and in the meantime keep praying for me and my family. If and when it DOES happen it's gonna be a huge change in our "normal" routine for a while. So while I ask you to pray for me and the actual transplant itself, I also ask that you remember my kids and Steve and the village that will be taking care if business until I can come back to my "command" position here at home. ( I have been married to a fireman too long! hhaha)
Love you all....
